About Us

The Australian Cerebral Palsy Register is an Australia-wide collection of statistics on cerebral palsy from the states and territories of Australia. The Register collects information about individuals with cerebral palsy who were born in or reside in Australia. At present, NSW, ACT, Queensland and Tasmanian data is being collected via this website. Please go to the Contact Us screen and use the relevant contact details to notify a record from another state or territory.

The register is managed at the national level by the Cerebral Palsy Institute, a division of Cerebral Palsy Alliance in NSW.

Each state and territory manages their own comprehensive database but contributes a nationally agreed minimum data set to the Australian Cerebral Palsy Register.

Each state and territory CP Register is managed locally, so in WA data collection is managed by The Telethon Institute for Child Health Research, in NSW and the ACT data is managed by the CP Institute a division of Cerebral Palsy Alliance, in Victoria data is managed by The Royal Children's Hospital and the Murdoch Childrens Research Institute, in SA the Children, Youth and Women’s Health Service, Women’s & Children’s Hospital is responsible for managing the South Australian data, The Cerebral Palsy League of Queensland is responsible for Queensland data, Cerebral Palsy Tasmania is responsible for Tasmanian data and The Centre for Disease Control (NT Department of Health) manages the NT data.